Deepa Korea, CEO of Research Autism, talks to Al Jazeera on World Autism Awareness Day 2013.
Today, on World Autism Awareness Day, we want to take a moment to pause and reflect. Whilst WAAD is no doubt an important day in the autism calendar, we cannot and should not forget that people with autism and their families have to live with the often distressing effects of the condition each and every day of their lives. At Research Autism, our focus has been on providing the latest research and information on how autism interventions can help to improve the quality of life of people living with the condition.
The views of people with autism and their families have always been at the heart of what we do. That's why our programme of research over the past few years has focused on their needs and priorities.
The autism community has told us what is important to them, and we have listened and acted.
I am delighted to say that for nearly every single priority identified, we have been able to fund research and disseminate findings which will enable better treatments and interventions for people living with autism. This includes research completed on: early identification; bullying; challenging behaviour; self-injury; sleep problems; and employment. We still have one project left to fund from this initial set of priorities which will focus on the establishment and evaluation of a mentoring programme. This innovative project was developed and designed by a group of young adults with Asperger syndrome, and I am absolutely determined to see it implemented. I look forward to being able to tell you later in the year that we have managed to get this project off the ground!
In the autumn, we look forward to publishing our new priorities, which have once again been developed in partnership with the autism community. We would like to thank everyone who has supported our work so far, enabling us to provide information, support and guidance on autism interventions, where previously a vacuum existed
If you would like to find out more about our work, or how you can get involved with our charity, please don't hesitate to contact me on firstname.lastname@example.org.
CEO Research Autism
Bernard Fleming, Information Manager, Tel. 020 3490 3091, email email@example.com
Research Autism is the only UK charity dedicated to the production of quality, trusted information on autism treatments and other approaches. Its Information Centre is informed by world experts and accredited by the NHS Information Standard, an independent kite-mark of reliability and quality. It guides people through the minefield of interventions on offer, allowing them to make informed decisions based on impartial, factual information, including risks and hazards. Its research programme is derived from the priorities of autistic people and families and addresses areas that affect everyday life.