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Research Autism: Completed Research Projects

This section of our website contains information about some of the research projects funded and completed by Research Autism.

Our programme of research is intended to make a significant and positive difference to the lives of people with autism and their families.


Bullying in school

Adolescent with autism Description: This project was designed to establish the amount and form of bullying of pupils with Asperger syndrome in UK secondary schools

The research showed that a significant proportion of children with autism were bullied and were bullied more often than other children. The research also highlighted important behaviour patterns which might be linked to bullying and social isolation. The pupils with autism also reported having far few fewer friends and were less physically active, potentially leading to long term mental and physical health problems

Impact: This project provided important information about the amount and form of bullying of pupils with Asperger syndrome in secondary schools. This should help schools identify the circumstances around bullying of students with Asperger syndrome and a context for prevention and intervention.

More information: Bullying in schools project


Caregiver Stress Project

Adolescent with autism Description: Benefit Finding is an intervention in which participants take time each day to write about the positive experiences that accompany the stress of caregiving (such as greater appreciation for loved ones, increased appreciation of life, and development of interpersonal resource). It is believed that by doing this caregivers can improve their own mental and physical health and, in turn, improve the quality of life of the child they care for.

Impact: The potential overall reach as a result of the project is substantial. It is estimated that over 500,000 people in the UK are caring for a child with autism. The children they care for, and in many cases their siblings, are also expected to benefit from reduced stress levels in their parents.

More information: Caregiver Stress Project


Identifying early risk markers of self-injurious behaviour

Adolescent with autism Description: This project was designed to examine the amount, forms and causes of self-injury in people with autism.

Impact: This project provided research that identifies the amount, forms and causes of self-injury in people with autism. It also provided important information about the size of the problem and knowledge about how to intervene to reduce self-injury stances around bullying of students with Asperger syndrome and a context for prevention and intervention.

More information: Identifying early risk markers of self-injurious behaviour project


Prisons

Adolescent with autism Description: This project is designed to establish the prevalence of autism in prison populations.

Impact: This project was conducted with the University of Edinburgh and attempts to estimate the numbers of individuals on the autism spectrum in prison in Scotland with a view to a wider examination across the UK. . An essential part of the project is to validate a screen that was designed by Research Autism (Howlin,Cullen, Mills, Brugha, Corocombe, Wing) that is based on the ASDI (Asperger Syndrome and High Functioning Autism Diagnostic interview (Gillberg and Ratram 2001).

More information: We are currently awaiting a report from the University of Edinburgh.


QUEST: Ascertaining prevalence, severity, impact and pervasiveness of emotional and behaviour problems in children with autism

Adolescent with autism Description: This project conducted with Guys Hospital was a response to a neeed for the rapid and reliable detection of potential problems in children with autism and the need for a reliable and valid clinical screen. that would identify the prevalence, severity, impact and pervasiveness of emotional and behaviour problems. It tested two different screening tools to see which is better at picking up those problems in community settings.

Impact: This project provided valuable information to health clinicians on the amount and form of emotional and behaviour problems in children with autism. It also determined which is the best, low cost, quick screening tool that can be used to identify young children with autism at risk of such problems. This will enable clinicians and others to provide targeted help to those children.

More information: QUEST: Ascertaining prevalence, severity, impact and pervasiveness of emotional and behaviour problems in children with autism


Re-Mapping Autism Research in the UK: Identifying Priorities for the Decade Ahead

Child with autism and teacher looking at globe Description:This project is designed to identify the current level or research activity worldwide that will provide a context and help to shape priorities for research over the next decade
Working with the Institute of Education UK we will revisit the data-sets generated by the original research, conducted ten years ago. We will also be involving the autism community in this project to inform our views on priorities.

Impact: This project is designed to

  • Contribute to scientific understanding and knowledge of the status of international research
  • Assist in setting priorities and helping to ensure that research funding is targeted on areas where it is most needed

More information: Re-Mapping Autism Research in the UK: Identifying Priorities for the Decade Ahead


SCAmP: Early Intervention-Effects of Behavioural Approaches in Autism

Adolescent with autism Description: The University of Southampton study was part-funded by Research Autism and was designed as a test of whether EIBI for children with autism is beneficial in routine use in the UK when compared with standard pre-school provision.

Impact: This project reported that EIBI can be an effective and practical intervention for pre-school children with autism in the UK. It also showed that EIBI can lead to a number of significant improvements in children's capacities without negatively affecting the psychological wellbeing of their parents.

More information. SCAmP: Early Intervention-Effects of Behavioural Approaches in Autism


Sleep Database: Severe Sleep Related Issues in Children with Autism

Adolescent with autism Description: This project was a result of a Research Autism forum on sleep problems in autism and was designed to explore some of the severe sleep related issues that children with autism experience. Working with the University of Keele and the National Autistic Society an online database of sleep research is now available to clinicians, researchers and parents alike.

Impact: This project provides researchers with a greater understanding of the character and prevalence of sleep problems in individuals with autism. It also highlighted a number of key areas that warrant further research which will further knowledge and understanding whilst advancing the scientific research field.

More information. Sleep Database: Severe Sleep Related Issues in Children with Autism


Snuggledown: Sensory weighted blankets in children with autism

Adolescent with autism Description: This project is in conjunction with Guys Hospital London and is related to a priority identified by Research Autism concerning sleep problems in autism. This aspect of the work on sleep concerns a clinical trial of the effectiveness of weighted blankets in children with autism who suffer from poor sleep.

Impact: This project will provide evidence of the effects of weighted blankets in children with autism who suffer from poor sleep.

More information. Snuggledown: Sensory weighted blankets in children with autism


Test Foods Study: Preparation for a Large Scale Study into a Gluten-Free, Casein-Free Diet.

Adolescent with autism Description: The need for high quality research into biomedical interventions was identified as a priority when Research Autism was established. This partial study, funded by Research Autism was part of a broader research study called Can Diet Affect Autism (CANDAA), a large scale study into the effects of a gluten-free, casein-free diet. This specific aspect of the broader study investigated the feasibility of producing test foods which were transportable, easy to prepare, palatable and suitable for daily consumption by young children with autism.

Impact: This project provided important information about how to develop and test a range of double-blind test foods for regular consumption by young children with autism. This is essential preparation for a large scale multi-centre randomised control trial of gluten and casein free diets in the management of autism.

More information. Test Foods Study: Preparation for a Large Scale Study into a Gluten-Free, Casein-Free Diet.


Related Pages

Quick link:
http://researchautism.net/completed-projects
Updated
26 May 2015