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Autism Research Undertaken by Organisations other than Research Autism

Two women writing key points This page provides details of autism research studies being undertaken by organisations and individuals other than Research Autism.

Information on each study is normally posted on this page for a period of 3 months. It is also posted on our social media channels including Twitter, Facebook, Google+ and Linked-In.

If you are involved in postgraduate research and would like us to help you with your study please download and return this form: Application for advertising for research participants

Please note that your study will need ethical approval from your university or other suitable body (such as the NHS) before being advertised.

We regret that we are unable to accept undergraduate research projects.

Thank you.


The Social Relationships Study 2.0 

This research aims to improve services providing assessment of children with social relationship and communication problems, by better understanding the key strengths and difficulties that make different groups of children distinct from each other. This may help to improve our ability to make quick and accurate diagnoses so that the appropriate treatment can be provided.

The research involves three meetings; one with you on your own (can be a home visit if preferred), and two meetings at the West Glasgow Ambulatory Care Hospital with your child. We will pay your mileage or a taxi and offer £20 participation fee.

If you live in greater Glasgow and Clyde, have a primary school age child with a diagnosis of autism spectrum disorder / Asperger’s syndrome, you can express interest via email: claire.davidson@glasgow.ac.uk, on 0141 2019239 or by text/call: 07547463177 and I will be able to tell you more about the study.

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Understanding the School Experiences of Siblings of Children with Autism

Do you have a sibling with autism? And are you in secondary school aged 11 to 16 years old?

My name is Alexandra Gregory and I am a Trainee Educational Psychologist studying the Doctorate in Educational Psychology at the University of Southampton. I am also a sibling to someone with autism. As part of my course, I am carrying out a research study that aims to explore the school experiences of siblings of children with autism.

If you are a sibling to someone with autism at secondary school (the child with autism can be any age up to 16), I would be really grateful for your participation. Taking part involves completion of an online questionnaire and will help to further our understanding in this area.

If you would like to find out more and/or would like to take part, please contact me at ag2g15@soton.ac.uk. Look forward to hearing from you!

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Gender Differences in Social Awareness - Motivation and Mental Health in Individuals with and without Autism

We are currently conducting important online research which aims to speed up the identification of autism in adults, especially in those whose autism is often masked or with mental health difficulties. We would like to invite all individuals to take part in the research, regardless of diagnosis or gender.

The study involves filling in an interesting survey made up of several different questionnaires and tasks related to social skills and awareness and also mental health. It should take you no longer than 20 minutes and if you choose to leave your email address at the end you could win £100s worth of Amazon vouchers!

For more information please contact Hannah.belcher@anglia.ac.uk. To take part please visit: https://aruspsych.eu.qualtrics.com/jfe/form/SV_0v4xMR49JQ2mryZ

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Comparison Between the Cognitive Profiles of Individuals over 50 Years of Age with and without an ASD Diagnosis

I am a trainee clinical psychologist at University College London. I am conducting a research project that compares cognitive and memory abilities in individuals over the age of 50 with a diagnosis of autism spectrum disorder (ASD) to those without.

We are looking to recruit a group of high functioning individuals over the age of 50 with a diagnosis of ASD to complete tests of memory, and cognitive abilities. You could choose to complete the tests either at your home, or elsewhere if so you choose.

All participants in this research will receive a report detailing their performance on gold standard tests of memory and IQ upon successful completion of the testing sessions.

If you are interested in my study or would like further information about the study, please do get in touch by contacting me on 07548542641 or email me at venus.tse.10@ucl.ac.uk

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Stress and Resilience Among the Parents of Children with Autism Spectrum Disorder: Felt Stigma and Perceived Supports: A Cross-Cultural Study

India, a country with collectivistic culture, has blindly adopted the established procedures and theories of western countries, which follow an individualistic culture. These western understandings are uncritically applied in developing countries like India. It is important to have a reliable model of stress and resilience for families or parents of children with autism spectrum disorder.

The study will investigate the different factors impacting on stress and resilience in UK and India. The aim of this research is to have a cross-cultural comparison, between the parents of children with ASD in the UK and in India, regarding the relationship of perceived social support and perceived emotional support with their stress and resilience.

You can find the online survey on the Qualtrics platform at https://aruspsych.eu.qualtrics.com/jfe/form/SV_8tVuo2fFMtpyhox

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The Mental Health Needs of Adults with Asperger Syndrome and High Functioning Autism: A Parental Perspective

My name is Cirlei Ioris and I am a MSc student in Public Health at University of West of England (UWE). I am undertaking a research study that aims to explore parents’ views about the mental health needs of adults with high functioning autism (HFA) and Asperger syndrome (AS).

This study aims to give parents a voice about their views on the needs of people with autism and mental health. Their experiences and views may contribute to a better understanding of what type of support is needed to be in place for adults with high functioning autism and Asperger syndrome.

I aim to interview parents of adults (18+) with high functioning autism or Asperger syndrome who also present at least one mental health problem. I will provide a Participant Information Sheet if they want to know more about this research and what it will involve.

If parents would like to participate, they can contact me on my email: Cirlei2.Ioris@live.uwe.ac.uk or you can text me on 07767 671633. I will then contact them to answer any question they may have about this study, and if they would like to proceed we will arrange a convenient time and place for the interview.

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Study of Cross-Modal Influences on the Perception of Emotions for Children Diagnosed with ASD

This study has been designed to explore the emotions young people diagnosed with autism perceive visually and whether these can be influenced by emotional auditory stimuli.

We are looking for young people (aged 8 to 11) to take part in this valuable study. This will involve looking at social emotional pictures whilst hearing congruent/incongruent emotional music being played. The participant will tell us which emotion they are perceiving through the visual stimuli by pressing one of four buttons provided for them.

The tests have been designed to represent a game like experience, making it more appealing and entertaining to the young participants.

By taking part, you will enable the progress and completion of this exciting new study, contributing to the understanding of young people diagnosed with autism’s ability of perceiving emotions.

No travel is needed as the researcher will bring the equipment to the participant.

If you are interested, please email jtrot001@gold.ac.uk

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Conversations with People with Autism - a Survey of Partner Perceptions

Do you have conversations with someone with autism? If so, we want to hear from you. 

We have all heard about the difficulties people with autism have with reciprocal conversations but not enough is known about how this affects the interaction from the conversation partner’s point of view. This time we want you, the conversation partner, to tell us if any of the reported difficulties is problematic.

If you are 16 years of age or above and the person you have in mind can speak in full sentences and is more than 5 years of age you can participate in our online survey (link below). It will only take around 10 minutes to complete and the results may help us understand the conversational needs of people with ASD.

https://mqedu.qualtrics.com/jfe/form/SV_9npJU5JbLAKYoe1  

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Causal Attributions and Teacher Self-Efficacy in Relation to Restricted and Repetitive Behaviours in Children with Autism Spectrum Disorder

Restricted and repetitive behaviours (RRB) are key diagnostic characteristics for Autism Spectrum Disorder (ASD). Evidence for parent mediated management programmes focussing upon RRBs currently exists but little attention has been given to understand how teachers perceive and manage RRBs in their classroom. This study therefore aims to address a gap in the evidence base in relation to teacher’s attributions of, reactions to and management of RRBs. 

The study aims to recruit teachers who have worked with a child/children with a diagnosis of ASD in either mainstream or specialist educational provisions. Participation involves the completion of an anonymous 20-25 minute online survey (http://nclpsych.eu.qualtrics.com/jfe/form/SV_5C0LzmSRYRDCDMF).

Participants wishing to supply a contact email address at the end of the survey will have the chance to win one of three £20 Amazon vouchers. It is hoped that in the future these findings will contribute towards the development of a teacher mediated intervention programme for RRBs.

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Aligning Dimensions of Interoceptive Experience (ADIE) to Prevent Anxiety in Autism

Interoception is the ability to sense internal changes in the body such as heart rate. Some of our recent work has shown anxiety can be increased if there is a discrepancy between how well patients feel they can interpret bodily signals, such as their heartbeat, and how well they are actually able to do this.

We have found that helping people to be more aware of their ability, and to increase their ability to interpret signals from the body helps reduce and may prevent anxiety symptoms.

We would like to try out and compare a new treatment, Aligning Dimensions of Interoceptive Experience (ADIE), teaching ASC (autism spectrum conditions) patients these skills against the current treatment. 

You will receive £7,50 for every hour you spend with us and will be reimbursed for your travel to the University of Sussex where the study takes place. If you are interested to participate, please contact Charmaine Kohn Tel: 0300 304 0088 Email: AskAboutResearch@sussexpartnership.nhs.uk

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Investigating Social Confidence and Mental Imagery in Autism

Can you help with research into what influences social confidence for people with autism?

My name is Juliette Attwood and I am a trainee clinical psychologist at the University of Bath. I am conducting a research project aimed at understanding what some of the psychological factors are that contribute to how socially confident people with autism feel. I hope that this will help improve the support that psychologists can offer.

This first part of the project is an online survey which takes approximately 20 minutes and you will be entered into a prize draw for some Amazon e-vouchers. There is also an optional follow-up telephone call (or face to face meeting if you can come to Bath) for which you will receive reimbursement. 

Please follow this link to see the full information sheet and decide if you’d like to take part: https://bathpsychology.eu.qualtrics.com/jfe/form/SV_73ZfgSFZqnercK9

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Survey of Usual Care for Children with ASD who have Sensory Processing Difficulties.

In this survey, we are interested in finding out what is normally available on the NHS throughout the UK for children with autism who have sensory processing difficulties.

This survey forms part of a bigger piece of work taking place in occupational therapy (OT) services – the next step will be a randomised controlled trial comparing what we find in this survey with sensory integration therapy. When the randomised controlled trial starts, it will be run in South Wales and Cornwall.

We would like to build an accurate picture of what services are currently offered to families in your area, and would welcome your views in this survey.

You should complete this survey if you have a child who is between the ages of 4 and 11 who has autism and associated sensory processing difficulties, and is in mainstream education https://cardiff.onlinesurveys.ac.uk/senita-parent-survey

Following this survey a discrete number of parents or carers may be contacted to take part in either telephone interviews of focus groups, if you would be interested in being contacted for this purpose please ensure you provide your contact information when asked and indicate your interest at the end of the survey. 

If you have any problems or questions about the completion of the survey or if you would like more information about the possibility of your child participating in the main study please click contact email Elizabeth Randell at the SenITA Team.

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What are the Processes by which Parents and Caregivers of Females with ASD without Cognitive Impairment come to Understand their Child’s Behaviours as Requiring Intervention?

I am a trainee clinical psychologist at the University of Surrey looking for parents of girls with an autistic spectrum disorder (ASD) to take part in a study.

I’m interested in understanding why it takes longer for girls to receive a diagnosis of ASD than boys, by exploring parent’s thoughts and stories about the ‘lead up’ to their daughter’s first clinic visit.

To take part, you would be required to meet with me once, and tell your story. This meeting could take part either at your home, or at the University of Surrey in Guilford (reasonable travel costs can be reimbursed).

Please let me know if you are interested in my study by contacting me by email on n.kseib@surrey.ac.uk

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Eating and Dietary Behaviours in Children with Autism Spectrum Disorders

Researchers at the University of Hertfordshire are looking for parents of children with autism spectrum disorders aged between 7-16 years.

If you choose to take part, you will complete a series of online questionnaires about your child’s eating behaviour, food intake and your mealtime behaviour.

The study will take approximately 25 minutes and you can complete it in the comfort of your own home. To find out more and take part, please click on the following link: https://herts.eu.qualtrics.com/jfe/form/SV_0UnFQbhd0WvGouh

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Practitioner Beliefs About the use of Sensory Rooms with Individuals on the Autism Spectrum

We are looking at the use of Multi-Sensory Environments (MSEs; which are sometimes called sensory rooms or Snoezelen rooms) with individuals with an autism spectrum disorder (ASD).

Our study involves practitioners (e.g. someone who works with an individual with ASD in an MSE, such as a teacher, teaching assistant, occupational therapist etc.) completing a 10-minute online survey. Within the survey they will be asked how much they agree or disagree with statements about MSE use for individuals with autism.

We hope the information from this study will inform the use of MSEs for individuals with ASD in the future. This study has been approved by the Cardiff University School of Psychology Ethics Committee.

If you would like some more information, or are willing to take part in our short survey, please click on the link: https://cardiffunipsych.eu.qualtrics.com/jfe/form/SV_a46peWq4WhN7Lr7

If you have any questions, please contact Katy Unwin (PhD student) on UnwinK@cardiff.ac.uk.

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CAASD: Cracking the Pitch Code in Music and Language: Insights from Congenital Amusia and Autism Spectrum Disorders

We are looking for individuals with high-functioning autism (HFA) or Asperger syndrome (AS) to take part in our study.

Aims: To explore music, language, and emotion processing in individuals aged 7-65, and how these abilities are linked to pitch, memory, and cognitive capacities. The findings will help us develop treatment plans for music or language problems in amusia and autism.

Procedure: The experiment will last about 1-2 hours, involving listening to and responding to some speech/musical sounds, looking at and making judgments about some images, and performing some cognitive tasks.

Compensation: You will be paid £7.50 per hour and your travel expenses to the University of Reading will be reimbursed.

Please sign up at https://reading.onlinesurveys.ac.uk/registration-form

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Related Pages

Quick link:
http://researchautism.net/take-part-in-autism-research
Updated
21 Sep 2017